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现实版“睡美人”可连续昏睡两月

[实用英语]      来源:

 

因患有罕见的克莱恩-李文综合症,21岁的英国女孩莉莉常常会昏睡不醒,最严重时曾经连睡两个月,成为现实版的“睡美人”。据莉莉的母亲介绍,她第一次发病是在2007年11月,全家出去滑冰后到一家饭店吃饭,莉莉没等餐点上桌就睡着了,之后一直睡了将近一个月,每天睡23个小时。之后的几年间,莉莉因为长睡不醒而错过了生日、学校考试、圣诞节、新年等很多人生重要日子。莉莉的母亲在2010年看到报纸上的一则报道后才知道女儿所患的病症为克莱恩-李文综合症,不过这一罕见病种目前没有任何治疗方法,只是有迹象显示部分患者可能会随着年龄增长而自愈。

1现实版“睡美人”可连续昏睡两月11 

Lily Clarke, 21, has a rare condition called Kleine-Levin syndrome, which makes her nod off for a month at a time. She wakes only to eat and drink before returning to slumber.

 

Over three years she was seen by seven different consultants and underwent a battery of medical tests, but was only diagnosed when her mother read about a similar case in the Daily Mail in February 2010.

 

'As soon as I read the symptoms I recognised them,' Adele, 47 said.

 

'It was such a relief to finally find someone who knew what I was describing.'

 

Ms Clarke said the condition first came on when the family, from Halsemere, Surrey, went ice skating in November, 2007.

 

'Lily was uncharacteristically quiet and kept saying: "My head feels strange - I don't feel well." I just thought she was coming down with a cold.'

 

After the skating they went to a restaurant and Lily fell asleep through the whole meal.

 

Lily refused to get out of bed for the next 25 days, barely eating or drinking. She slept for 23 hours a day and couldn't bear noise or light.

 

A month later Lily was due to take some mock exams but suffered a further three-week episode before making a similar 'miraculous' recovery. A third two-week episode followed a few days after her 18th birthday and her parents had to cancel her party.

 

Doctors suggested conditions from migraine to ME and depression. A consultant neuropsychiatrist suggested Lily was suffering from 'recurrent depressive episodes'. She was prescribed anti-depressants and a course of cognitive behavioural therapy.

 

However, a fourth episode followed in July 2008. This time she was awake for a few hours each day but was afraid to be alone.

 

'She behaved like a four year old, cuddling her teddy, sucking her thumb and crying that she thought she was going to die,' Ms Clarke said.

 

Lily continued to have regular episodes and although she managed to go to university she was falling behind with her studies. Without an official diagnosis she could not be granted 'extenuating circumstances.'

 

Then in February 2010, Ms Clarke read an article in the Daily Mail about Louisa Ball, who suffered with the 'sleeping sickness' Kleine-Levin syndrome.

 

She contacted the paper who put her in touch with Louisa's parents and the KLS Foundation in America. They advised her to see Professor David Nutt at the Chelsea and westminster Hospital, who confirmed Lily had the condition.

 

The symptoms match the ones Lily suffered. Sadly there is no cure, although there is some suggestion that some sufferers do grow out of it.

 

She met with two other British mothers who had children with the rare syndrome and together they set up the website www.kls-support.org.uk to raise awareness.

 

Ms Clarke said: 'It is only through talking to other parents, I now understand that in an episode Lily feels like she is trapped in a horror film where everything is confusing.

 

'Her brain cannot process information. When asleep, her dreams are vividly real. When awake she hallucinates and nothing feels real.'

 

To help Lily cope, they have no visitors during episodes and keep to a quiet and calm routine. Lily also watches a familiar children's film over and over.

 

Ms Clarke said she now felt more confident how to deal with the condition and was proud of how Lily was coping.

 

'Lily has learnt regardless of what she has missed out on, she needs to pick herself up and live every moment of her life to the full.'

 

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现实版“睡美人”可连续昏睡两月文章来源头牌英语[实用英语]
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